Wednesday, July 22, 2015

Paws for a cause

So now Alex is on 3 different medications to help try and manage his issues of concentration, seizures and a few others.

I am always trying to think of new ways to help him. He tries so hard and has to go through a lot for a kid his age. I spend a lot of time researching medical and alternative therapies. By alternative therapies I mean supportive, proven therapies such as Occupational Therapy, Speech Therapy, Psychology, not dangerous Jenny Mccarthy nonsense such as chelation.

There have been lots of recent studies which have proven Autism Assistance dogs to be extremely useful as both a service dog, like they are used for the blind, and an emotional support for an Autistic person. The dog can help with safety issues such as wandering off (which we have been scared shitless by recently) the dog will circle the child repeatedly and bark to alert nearby adults that the child is attempting to wander.

Here's a brief excerpt from Wikipedia about some of the proven benefits:
BehaviorResponse
Self-stimulationWill signal behavior to handler, handler may choose to stop (potentially harmful)
Self harmingWill interrupt behavior
Overstimulation/meltdown/shutdownDeep pressure tasks: step on foot, paws on lap, lie on handler
Poor balance/motor controlCounterbalance, brace for stability
DisorientationFind the car, go home, find other specified places
Auditory scene analysisAlert to important sounds
Visual processing problemsGuide work - steer around obstacles
To help prevent the child from wandering or running away.In addition to the above responses, there are three major ways a service dog can help, especially with children:
  • To help with self-soothing during melt-downs. The tactile stimulation, whether by petting, hugging, or having the dog actually lie on the child, can help the child learn the skills of calming themselves.
  • Socialization (including serving as a "social bridge", so as children and adults come over and ask about the dog, the child with autism is prompted to answer. The parent should not answer questions, but should refer all inquiries to the child. Thus with the dog, rather than having just the parent or teacher try to bring the child out of their own world, the entire community is talking to the child.)
A long-term study of service dogs and children with autism reported:
  • “Highly significant increase in pro-social behavior with a parallel decrease in self-absorption."
  • "Fewer autistic behaviors - examples include clicking noises, repetitive spinning or jumping or hand-posturing (stimming), and bolting or roaming."
  • "More socially-appropriate behaviors (such as reaching up for hugs, frequently imitating the therapist's actions, joining or initiating games).”
Autism Assistance dogs can be trained to help keep the child safe. With tracking the family is able to quickly find the child if they wander away and can't be seen. With tethering the family is able to enter the community with their child who has Autism safely. The parent is always in charge of the dog.
I believe an Autism Assistance dog could really benefit Alex. There are public programs which offer this but of course, as it is the case with most public programs, demand outweighs supply. There are programs where you can buy a puppy and do the training yourself, but that training is expensive.
I have set up a Go Fund Me page to attempt to raise enough funds to purchase and train a dog fro Alex.
Please visit and donate today.
http://www.gofundme.com/zxv52k

Sunday, July 5, 2015

The Squeaky Wheel

I don't like whinge posts, I really don't but I think more needs to be said about the inequality in the disability world. I get better discounts for movies being with Telstra than being a carer, tell me what is right or fair about that picture?

The classification by the government of 'high income earners' is obscene. Where any household earning above $60k a year is excluded from a myriad of discounts and payments. While I don't exactly think we should be giving 'handouts' to the rich either, the means test is now just an income and assets test. It does not test your means at all. You can be earning $100,000 a year but if our outgoings are $98,000 a year because of necessary bills for food, education and therapy, you're not exactly the millionaire.

Being above the magical line cuts you off to more than just the Carer Payment. It denies you the pension card which then denies you access to discount energy bills, discount medicines, discount or in some cases free stamp duty, discount movie tickets, car registration the list goes on. I earn nothing, zip, zero dollars a year. What is my compensation for giving up any idea of a career of my own that could improve our family finances? Free entry to the zoo. I feel so rewarded. I get better rewards with Flybuys, and I rarely shop at Coles any more.

How is the 'household income' indicative of how much I sacrifice to put my childs needs first and everything else second? Sorry boss, I need to leave early because my child has had a seizure at school, yes I'm well aware he had a seizure last week and therapy the week before but I really need to leave this time too. Wrong answer, you're fired for being too unreliable. Is the teacher meant to leave the class and ride in the Ambulance to the ER? Maybe after school care will be up to date with all the speech therapy and OT techniques. Yeh, and pigs might fly.

I sacrifice my time and my future prospects so that my sons future prospects are brighter. So that instead of being a burden on society because he has no coping mechanisms, he may actually go to university and be a valuable and productive member of society. Think of the tax savings I'm giving you, the Government. Instead of needing government funding to stay in care for the rest of his life, I am spending my time to turn him into a tax paying citizen. And you think free admittance to the Aquarium is justified reparations?

Shame on you Martin Foley!